The PNH Research and Support Foundation

To fulfill our mission to provide patient support, the Foundation seeks to ensure that all PNH patients can see a PNH specialist to seek the best course of treatment. We also help patients with costs related to bone marrow transplants in cases where this treatment is required.

The PNH Research and Support Foundation is proud to provide financial aid up to $3000 per eligible, U.S.-based PNH patient with demonstrated financial need, for the following costs: 

1) Medical fees to see a PNH specialist for the first time that are not covered by insurance, and related travel costs

2) Travel and housing fees for PNH patients undergoing a bone marrow transplant

3) Unrelated donor searches for those in need of a bone marrow transplant including bone marrow drives

4) Costs for human leukocyte antigen (HLA) testing to determine sibling compatibility for a bone marrow transplant

To apply for patient support, please email info@pnhfoundation.org. Please indicate the category of expense above you are interested in applying for.