The PNH Research and Support Foundation is dedicated to funding research to find a cure and new treatments for Paroxysmal Nocturnal Hemoglobinuria (PNH disease) and to helping PNH patients in need with funding for disease-related expenses not covered by insurance.
NEWS + ANNOUNCEMENTS:
The 6th annual Walk for PNH took place in New York City and in LA (Long Beach) on September 25, 2011. We raised $40,000 this year and had an amazing time. In 2012 we are planning to hold walks in New York, LA and Chicago and are setting our fund raising goal at $60,000!