Marlena Connor is an Account Director at Deutsch Inc., an integrated advertising and communications agency in New York City. Her background includes 15 years of experience in advertising and internet marketing at several leading agencies. Marlena was diagnosed with PNH in 2005 and is an active member of the PNH Community.

Tamir is a solutions specialist for Microsoft in the Mid-Atlantic States region and has been working in the software industry for the last 10 years. He was formerly an officer (secretary) and on the board of thinkXML, a VC funded startup that  was founded in 1998 and was acquired by Zions Bank in 2001. Tamir was diagnosed with PNH in April 2004, and had a blood stem cell (bone marrow) transplant to cure him of PNH in July 2004. He has since then been actively involved in fund raising activities for the PNH Research and Support Foundation.

David is Sara Higgins' (the founder of the PNH foundation) father and an optometrist in Eliot, ME. Before becoming an optometrist, he graduated from Penn State with a Ph.D. in psychophysiology. His primary research was in the arena of pain.

Margaret is a research scientist in horticulture at the University of Illiniois, Urbana-Champagne, specializing in plant propogation and improvement via plant tissue culture. She was diagnosed with aplastic anemia in 1961, and 6 months later was diagnosed with PNH at the age of 8. She is active in patient support on the PNH Support Group website (www.pnhdisease.org).

David is a lawyer in Maine, and also has a long history of public service. His knowledge of the workings of nonprofit organizations has been a valuable asset.

David, a graduate of Harvard Medical School, is an assistant professor of hematology at NYU School of Medicine as well as a member of NYU Hematology Associates. As one of the top PNH specialists in the country, he has vast clinical and research experience with PNH and is currently on the scientific advisory board of the PNH Registry. He has presented at several patient conferences on PNH and is very dedicated to his patients.

Susan is the owner of a retail arts business in Chicago. She has been an account executive and benefits analyst in the insurance industry. She has a MUPP in urban planning, specializing in health planning and policy. She has worked in community and economic development, public health research and has a strong interest in access to health care issues. She was diagnosed with PNH/AA in 1998, has attended several AAMDSIF patient conferences and is active in the PNH Support Group.