The PNH Research and Support Foundation
PO Box 10983
Rockville, MD 20849
ph: 888-582-9993
fax: 888-582-9993
info
About the Foundation
The PNH Research and Support Foundation is managed by volunteers who are dedicated to serving the PNH patient community:
Marlena Connor - President
Marlena is an advertising executive in New York City with more than 15 years' experience in the communications industry, working with Fortune 500 brands. She is an active member of the PNH community and plays a lead role in organizing the annual Walk for PNH fundraiser.
Judith Irvin - Vice President
Judy administers several community development services programs for the City of Salina, Kansas, including housing rehabilitation and municipal code enforcement. She has a B.A. in Education and participates in the work of several non-profit boards engaged in education and quality of life issues. Judy was diagnosed with PNH/AA in 2006, has attended NORD regional patient conferences and is active with the PNH Support Group.
Melanie Marquez - Secretary
Melanie has been a legal secretary in the field of family law for several years. She has a B.A. in Criminal Justice and has served in the Illinois Army National Guard. Melanie was diagnosed with PNH in 1990 and is an active member of the PNH Support Group (www.pnhdisease.org).
Stephen King - Treasurer
Stephen is Senior Manager of Implementation Services for Patient Care Technologies(MEDITECH, Inc), a clinical information systems vendor for the home health and hospice industries. Stephen was a former medical systems engineer for Toshiba America and is a veteran of the United States Marine Corps. He is active in the AA&MDS International Foundation patient conferences and the PNH support site - pnhdisease.org. He is a member of the American Institute of Biological Sciences Consumer Peer Review for Blood Cancers and Bone Marrow Failures. Stephen was diagnosed with Severe Aplastic Anemia in June 1985 and PNH in November 1988.
Tamir Orbach - BoardmemberTamir is a solutions specialist for Microsoft in the Mid-Atlantic States region and has been working in the software industry for the last 10 years. He was formerly an officer and on the board of thinkXML, a VC funded startup that was founded in 1998 and was acquired by Zions Bank in 2001. Tamir was diagnosed with PNH in April 2004, and had a blood stem cell (bone marrow) transplant to cure him of PNH in July 2004. He has since been actively involved in fund raising activities for the PNH Research and Support Foundation.
Susan Todd - Boardmember
Susan is the owner of a retail arts business in Chicago. She has been an account executive and benefits analyst in the insurance industry. She has a MUPP in urban planning, specializing in health planning and policy. She has worked in community and economic development, public health research and has a strong interest in access to health care issues. She was diagnosed with PNH/AA in 1998, has attended several AA&MDSIF patient conferences and is active in the PNH Support Group.
Dr. Shariq Ali - Boardmember
OUR MEDICAL BOARD:
David, a graduate of Harvard Medical School, is an assistant professor of hematology at NYU School of Medicine as well as a member of NYU Hematology Associates. As one of the top PNH specialists in the country, he has vast clinical and research experience with PNH and is currently on the scientific advisory board of the PNH Registry. He has presented at several patient conferences on PNH and is very dedicated to his patients.
Dr. Wendell Rosse - Professor of Medicine Emeritus, Duke University
Contact Us
(888) 582-9993 and leave a voice mail, or email us at info@pnhfoundation.org
Copyright 2009 PNH Research and Support Foundation. All rights reserved.
PO Box 10983
Rockville, MD 20849
ph: 888-582-9993
fax: 888-582-9993
info
