The PNH Research and Support Foundation is dedicated to funding research to find a cure and new treatments for Paroxysmal Nocturnal Hemoglobinuria (PNH disease) and to helping PNH patients in need with funding for disease-related expenses not covered by insurance.
NEWS + ANNOUNCEMENTS:
The 5th annual Walk for PNH will take place in New York City on September 26, 2010. It's the biggest fundraiser in the US dedicated to PNH disease. Please visit here to register!
Also, NORD is hosting a series of support groups for PNH patients. Visit here to learn more, and register to attend.