The PNH Research and Support Foundation is dedicated to funding research to find a cure and new treatments for Paroxysmal Nocturnal Hemoglobinuria (PNH disease) and to helping PNH patients in need with limited funding for disease-related expenses not covered by insurance.
NEWS + ANNOUNCEMENTS:
AA&MDS International Foundation's schedule of regional patient conferences for 2013 is now available. Register now at the AA&MDSIF Conference Website. Before you go, catch up on many of the presentations and archived webinars with information about PNH here: AA&MDSIF Online Learning Center
NORD's schedule of regional patient meetings for 2013 is now available. Visit the NORD PNH Regional Meetings page for more information and past presentations.
The 8th Annual Walk for PNH will take place in New York City in September 2013. This is the largest event in the US dedicated to PNH disease fundraising. Keep an eye out for announcements of the Walk!