The PNH Research and Support Foundation

The PNH Research and Support Foundation is dedicated to funding research to find a cure and new treatments for Paroxysmal Nocturnal Hemoglobinuria (PNH disease) and to helping PNH patients in need with funding for disease-related expenses not covered by insurance. 

NEWS + ANNOUNCEMENTS:

The 4th annual Walk for PNH took place in New York City on October 17, 2009. It's the biggest fundraiser in the US dedicated to PNH disease. This year we were able to raise $46,000 thanks to everyone who participated, and donated!

Also, NORD is hosting a series of support groups for PNH patients. Email solivo@rarediseases.org to learn more, and register to attend.

AAMDS are hosting a series of webinars on topics relevant to PNH patients. Visit the site to learn more.

Support the Foundation and join the fight against PNH Disease by making a tax-deductible donation today!

Thank you Lon Larson, for this great photo of "Team Michigan"!