The PNH Research and Support Foundation

The PNH Research and Support Foundation is dedicated to funding research to find a cure and new treatments for Paroxysmal Nocturnal Hemoglobinuria, and to helping PNH patients in need with funding for disease-related expenses not covered by insurance. 

ANNOUNCEMENTS:

The 4th annual Walk for PNH will take place in New York City on October 17, 2009. This is the biggest fundraiser in the US dedicated to PNH disease. Mark your calendar to join PNH patients, their families and friends as we "take steps" to fight PNH!

Also, join us at the AA&MDSIF national Patient and Family Conference from July 10-12 in Indianapolis, Indiana.  Check out the agenda, speakers and all the conference information. Registration is free if booked before the June 24 deadline: LEARN MORE