The PNH Research and Support Foundation

The PNH Research and Support Foundation is dedicated to funding research to find a cure and new treatments for Paroxysmal Nocturnal Hemoglobinuria (PNH disease) and to helping PNH patients in need with funding for disease-related expenses not covered by insurance.

NEWS + ANNOUNCEMENTS:

The 7th annual Walk for PNH will take place in New York City on Sunday September 23, 2012.  We raised $40,000 last year and had an amazing time.  In 2012 we are setting our fund raising goal at $60,000! Please mark your calendars for this date. We will post a link to the Kintera Fund Raising site in the near future.

 Support the Foundation and join the fight against PNH Disease by making a tax-deductible donation today!

Thank Thank you Lon Larson, for this great photo of "Team Minnesota"!

OTHER PNH PATIENT EVENTS: 

1. AA&MDS International Foundation Patient Conferences:
• Los Angeles, CA 4/21/12
• Atlanta, GA 5/19/12
• New York City Area 7/28/12
• Dallas, TX 9/22/12
• Chicago, IL 10/20/12
2. NORD PNH Meetings 2012:
• Ann Arbor May 4-5
• San Francisco June 8-9
• Knoxville July 13-14
• Providence Sept 14-15
• Kansas City Sept 28-29
• Princeton Oct 12-13
• San Diego Nov 2-3